This week started off rough with Lucas having headaches, nausea, fatigue. Lab values confirmed an ammonia spike of 129. At an ammonia level of 180, Lucas is mentally incapacitated and it’s very scary. It’s like hanging out with a person who drank double digits beverages and cannot function. You can understand now how dangerous ammonia levels are. When a child with a failing liver shows signs of being unwell, it’s tough not to brace for the impending storm. Tonight was an extra blessing for us. N
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